I am doing a blog post for this special day..it helps me to know I am not alone in this daily battle with Fibromyalgia. For some good information, check out this website:
National Fibromyalgia Awareness Day
As tired as I am of having this syndrome, I fear I am at the beginning of a very long illness..my most recent issues, aside from the body pain, has been the pain in my feet. It’s called neuralgia and my feet feel like they are on fire. I don’t know how else to describe it..Oh I wish I could just put on my walking shoes and take a nice long walk..thank goodness I do have days the pain is not as bad, but the bad days really hurt. This has been a life changer, no doubt.
I am also at a crossroads with my Social Security Disability case..as most of you know, the judge denied my claim after my hearing in late January. After all that wait of two+ months, DENIED. Can I tell you how disheartening that was. I wish these people in charge could walk in my shoes for a few days, it would be clear to them the limitations most of us have. So I have a couple choices..My attorney rep is going to file an appeal..However, after waiting for another 12-18 months, the appeal hearing would be before the same judge. I can’t even guess as to what the point of that is, but it is what it is…basically he would be hearing my claim against his decision. That can’t be a good outcome at all. The other option I have is filing a new claim, start from scratch and hope with the documentation that I have, an approval would be given. I am considering changing attorneys and having one here in CA to start the new claim..I don’t relish the thought of starting over, but I almost see no other option..regardless of what I do, the appeal will go forward, as I have nothing to lose and an approval to gain. I am leaning towards doing the appeal and hiring a CA attorney and file from scratch here in CA.
Anyway, this is what is happening…I have gotten over my ‘mad’ at the judge and at this point just feel overwhelming disappointment and sadness at his decision. If only the folks at Social Security could spend a few days in my shoes.
My hope for all Fibromyalgia sufferer’s would be pain free days and nights..I don’t think that is too much to ask, is it? And my wish would be for others to become informed about Fibromyalgia and be more understanding when I can’t do something. I am blessed with a husband who ‘gets’ it, along with a few good friends who understand..that’s a lot more than some Fibro sufferers.
Make it a great day…
Posts
As I woke up today with joint and neck pain, I thought of you. I don't have pain 'all over' and can't imagine how frustraiting it is.
ReplyDeleteI hope you will get a new attorney and try again. In the meantime, feel better friend.
I have heard it is a struggle to get help, but that it will come eventually. I hope you don't give up. It must be so frustrating for you.
ReplyDeleteAnd I'm sooooooo sorry and mad that you have to hurt all the time.
Love and hugs,
sandie
I am sorry for the pain that you deal with on a daily basis.
ReplyDeleteFondly,
Glenda
I do know exactly what you're talking about. I too have Fibromyalgia and I also have diabetes and degenerative arthritis. Whew. I had shots in my back this week for the pain but today it wasn't helping much. I'm on disability now but it took two years to get it. All of my retropay went to attorneys and to Metlife who provided "long term" disability. ha
ReplyDeleteHugs XX
Barbara
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ReplyDeleteI sincerely hope that you will begin a new claim. It seems like the first claim is always, always denied. I found that to be true over & over for employees when I was working. I always encouraged them to keep on keepin' on ~ you WILL get an approval!
ReplyDeleteOh Barb. Please keep trying and file another claim. You never know, you might get a more "human" judge and it might pave the way for others who follow you. It is certainly discouraging and they count on you giving up. I can't imagine why anyone would not understand if you didn't feel well enough to do something. I read up on Fibro last year when you blogged about it and knowing others that have it, know that it can be very painful and life interupting. I'm hear for you, friend.
ReplyDeleteHi Barb, I too have the dreaded Fibro, and yesterday was my ssi exam. It's not only the fact your in pain but to go to this office where you know half the people there don't need it and the other half are the dredges from who knows where. So now I will wait for the denial. Is your pain more worse when the weather changes? Mine is. Which is why I can't take the winters here anymore. I'm there for ya! 8>)
ReplyDeleteI am sorry for your pain. File that new claim in your home state. I am praying you will get a more compassionate judge. I will write an e mail privately. This frosts me to no avail! Hugs Anne
ReplyDeleteGosh, thank you so much for all your comments and heartfelt caring..this is truly the most asinine syndrome..If only I 'looked' sick. The foot pain is truly what is hurting me the most..hopefully that fades soon!
ReplyDeleteAnyway, I will plug along with my claim and hang in there..Stay through this with me, friends..xo
How frustrating! It really makes me mad how some people can get disability for the slightest thing, and then here you are...
ReplyDeletePraying that things go better next go around!