I'm not really sure what to post for Pink Saturday, but as the theme says "anything goes" I'm going to share a little bit about what Carl and I are dealing with, Parkinson's Disease.
He was diagnosed with Parkinson's in June, 2018, he had tremors for a few years before that, though. It was pretty devastating news to be honest. Who dreams they will get that kind of news? I decided to dive in head first and research, research and research some more.
One of the first things I found out about is the Davis Phinney Foundation. Davis Phinney was a championship cyclist diagnosed with early onset about 20 or so years ago. This foundation has a plethora of information available, and Carl and I attended a seminar here in Reno in March. It has been so helpful! I highly recommend starting here.
Along with his Parkinson's diagnosis, Carl also has mild dementia. This scares me more than the Parkinson's! His mom passed from Alzheimer's, so that of course is my first thought. Carl has a different kind of dementia, her behavior was so different and he just doesn't have the symptoms of Alzheimers, at least not yet so we cross our fingers and pray it doesn't come to that.
We made the decision right away to live like we planned. Enjoy our family and friends, travel when we can until we can't, and just live each day the best we can. I don't know where this journey will take us, but we will travel it together!
Please visit Beverly at How Sweet the Sound and see what all the Pinkies are posting today! Thank you for visiting me and I love to read your comments!
He was diagnosed with Parkinson's in June, 2018, he had tremors for a few years before that, though. It was pretty devastating news to be honest. Who dreams they will get that kind of news? I decided to dive in head first and research, research and research some more.
One of the first things I found out about is the Davis Phinney Foundation. Davis Phinney was a championship cyclist diagnosed with early onset about 20 or so years ago. This foundation has a plethora of information available, and Carl and I attended a seminar here in Reno in March. It has been so helpful! I highly recommend starting here.
Along with his Parkinson's diagnosis, Carl also has mild dementia. This scares me more than the Parkinson's! His mom passed from Alzheimer's, so that of course is my first thought. Carl has a different kind of dementia, her behavior was so different and he just doesn't have the symptoms of Alzheimers, at least not yet so we cross our fingers and pray it doesn't come to that.
We made the decision right away to live like we planned. Enjoy our family and friends, travel when we can until we can't, and just live each day the best we can. I don't know where this journey will take us, but we will travel it together!
Please visit Beverly at How Sweet the Sound and see what all the Pinkies are posting today! Thank you for visiting me and I love to read your comments!
Posts
Thank you for sharing your journey. I know it must be rough but i think you have a great outlook. I enjoy your writing
ReplyDeleteThank you for you sweet comments! I'm trying to keep it all together!
DeleteYour grand kids had a wonderful week with you - bet their parents did happy dances and spread a great many thank you's back to you for such a blessing. Spoiling grand kids is such a pleasure.
ReplyDeleteKeeping you both in my prayers and thoughts.
Hugs.
Joy
I appreciate your prayers and yes we love to spoil these littles! Thank you for stopping by!
DeleteWhat an honor to have you take the time to drop by my blog with all the issues you are having. May you and husband's world find peace and comfort knowing there are many with your problem. Trust you will be showered with many blessings.
ReplyDeleteMy pleasure to stop by..thank you for your good wishes and thanks for your lovely comments!
DeleteBarbara, it was good to see you here. Sometime it is easier to share our journey, no matter if it is a happy or sad or in between one. Keep writing, it will raise your spirits and you will enjoy reading the wonderful comments. HUGS
ReplyDeleteI think i am finding my voice again. Im trying to think of topics to write about! Hugs back at ya!❤
DeleteHello, sending you a massive cheery hug from Australia. Parkinson's UK society also has a good website and local support groups, it's great you have found a seminar which was helpful. I love your live for the moment attitude! xx
ReplyDeleteHi Wren, thank you for visiting from so far away! I will definitely be visiting the UK Parkinson's site, I am always looking for help and answers. Have a great day!
ReplyDelete